Hi everyone and welcome newcomers!
Ayleiah: WOW! 16 brain surgeries! You must have amazing strength! I’m so sorry to hear about the loss of your twins over such a minor, but important, detail that could have been avoided. I know it is hard, but we have to think that what is meant to happen will happen. I hope you will go for it again and Im sure you will soon have a healthy baby!
Kate: I never even knew I was hypotpit until I turned 31! However, my mother tells me that as an infant I was with a growth specialist because I wasn’t growing well. They opted not to give me HGH because both my parents are very tall…and that was the end of it! I was never followed for hypopit which they must have seen my hormones were low? However, I did grow normally and never had symptoms until I happened to choose an endocrinologist as my primary MD. When I told him that I don’t get periods unless on the BCP, he started investigating and an MRI showed that I have stalk damage between my pituitary and hypothal and a part of my pituitary sits ectopic to where it should be. So, I consider myself partial hypopit. I do produce all the hormones except not as much as everyone else. The only med I take is thyroid hormone. My doc tried to put me on a corticosteroid but I ended up with massive muscle cramps and after continually decreasing the dose, and having a normal cortisol stim test, I argued with him to take me off of it, which I now do not take it and everything is back to normal! So, I did an IVF and got pregnant! I already had my doc draw thyroid levels and they are normal so far at 6 weeks. He said I must draw them every 4-6 weeks throughout the pregnancy. It is good they are getting your levels where they should be before getting pregnant! It sounds like you have many goods docs around you and that you are in good hands! Good Luck!
Mayfairwind: UGH! I can totally understand your frustration, especially because this is not a cheap process not to mention the emotional investment! Im so sorry! Have you considered consulting with another RE, maybe one who has worked with hypotpit patients? I just did an IVF and got pregnant, however I go for my first ultrasound this Friday, so fingers crossed…it is still very early on. If you read above, I mentioned I am monitoring my thyroid hormone levels very closely, as this can make or break a pregnancy, as you probably know! Im adding in the protocol my RE did with me. He did add HGH in but only for 3 days and my follicles responded quickly as well! Maybe you can present this protocol to your RE and see what she thinks? Granted we are all different and adjustments with the other meds might be needed but maybe it will help with the dose of HGH or whatever…I wish you the best of luck!!!
11/03: started on 3rd day of period:
2 vials (75 each) menopour
150 follistim (once a day)
11/05: increase menopour to 3 vials
increase follistim to 200 (once a day)
added in 1 vial of levaris (to mix with menopour)
started 2 estrogen patches (to help thicken lining), to be changed every other day (I am still on these patches)
11/10: (have been getting ultrasounds every 2 days)
continue with all of above
add in ganirelex (because a few eggs getting big) - for 3 days
add in 6 international units of HGH (for 3 days)
11/12: (after 3 days of ganirelex and HGH) - trigger HCG
11/14: ER (started progesterone - 2 vaginal suppositories and also continuing 2 estrogen patches on hips)
I don’t know if this will help but I will keep you in my prayers!! Same some prayers for my ultrasound on Friday! :bsv:
Yalen: Thanks for the info!!
Best of luck to everyone…we will all get there with a little extra TLC! :grouphug: